{"id":243,"date":"2026-08-19T18:41:14","date_gmt":"2026-08-19T18:41:14","guid":{"rendered":"https:\/\/perspectivesnewsletter.com\/?page_id=243"},"modified":"2026-08-19T20:24:46","modified_gmt":"2026-08-19T20:24:46","slug":"issue-2-summer-2026-page-1","status":"publish","type":"page","link":"https:\/\/perspectivesnewsletter.com\/?page_id=243","title":{"rendered":"ISSUE 2: SUMMER 2026 Page 1"},"content":{"rendered":"\n

<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Welcome to the second issue of Perspectives 2.0, a newsletter, about and for people LIVING well with dementia.<\/p>\n\n\n\n

<\/div>\n\n\n\n

Perspectives 2.0 is a revival of the original Perspectives newsletter, created by dementia advocate Lisa Snyder in 1995, and ended with her untimely passing in 2017. <\/p>\n\n\n\n

<\/div>\n\n\n\n

Perspectives 2.0 highlights the lived experiences of people with dementia. We offer an alternative lens from which to view dementia \u2013 one that is person- centered, not defined by a medical model. Person-centered means that the focus is on the person as a whole, not simply as a \u201cdementia patient\u201d.<\/p>\n\n\n\n

<\/div>\n\n\n\n

If you would like to read more about the values behind Perspectives 2.0 and browse the original Perspectives newsletter, you can find that here<\/a>.<\/p>\n\n\n\n

<\/div>\n\n\n\n

Perspectives 2.0 is created by and for people living with cognitive change. Our Editorial Board, comprised of people with lived experience, reviews our newsletter content, shares personal experiences, and recommends issues important to them. Our goal is to explore more about living well with dementia.\u00a0<\/p>\n\n\n\n

<\/div>\n\n\n\n

We are so grateful for the time, energy, and wisdom of our Editorial Board:<\/strong><\/p>\n\n\n\n

Arnie Beresh, Ellen Sue Moses, Seth Stern<\/strong>\u00a0<\/p>\n\n\n\n

<\/div>\n\n\n\n

So, let\u2019s hear from our Editorial Board members. <\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

What is a perspective about dementia that you wish other people living with dementia might have?<\/strong><\/p>\n\n\n\n

<\/div>\n\n\n\n

Celebrate your strengths<\/strong>, enjoy your people and laugh with yourself.<\/em><\/p>\n\n\n\n

-Ellen Sue Moses<\/p>\n\n\n\n

<\/div>\n\n\n\n

They need to know that there are others with the same problem<\/strong> and support groups to help them get their questions answered. There is life after diagnosis.<\/strong><\/em><\/p>\n\n\n\n

-Arnie Beresh<\/p>\n\n\n\n

<\/div>\n\n\n\n

There are many different types of dementia. And there is no one aspect that covers all of them.<\/strong> People are experiencing different characteristics relating to their dementia. I have frontotemporal dementia, and one of the unfortunate aspects of it is, you experience significant apathy. So, even though you may enjoy doing or experiencing certain things, that is taken away from you. My example of that is that I’m a retired OBGYN physician after 37 years. I always loved practicing medicine and doing deliveries and performing surgeries and establishing a good rapport with my patients. I was the type of physician that enjoyed arriving in the hospital early in the morning, one of the first, and staying all day, and one of the last to leave. And then, all of a sudden in 2021, I was greatly affected by apathy. I no longer had that desire to be first in the hospital or last to leave. Not everyone experiences it, and people have different degrees that they may experience it, but that was the way I was affected. The unusual thing is I don’t have constant apathy, and it is to different degrees. This past week, I had very significant apathy in which I didn’t really want to participate in things. I’m very involved with different groups relating to frontotemporal dementia and other types of dementia, and<\/em> I let the meeting leaders know in advance I may not be at the meeting, or, if I am at the meeting, I may not say much.<\/em> So that they wouldn’t be surprised. It\u2019s better to be open about what’s going on. I have determined that this is what works best for me.<\/em><\/p>\n\n\n\n

-Seth Stern<\/p>\n\n\n\n

\n
\"\"<\/a><\/figure>\n\n\n\n
\"\"<\/a><\/figure>\n<\/div>\n\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

Welcome to the second issue of Perspectives 2.0, a newsletter, about and for people LIVING well with dementia. Perspectives 2.0 is a revival of the original Perspectives newsletter, created by dementia advocate Lisa Snyder in 1995, and ended with her untimely passing in 2017.  Perspectives 2.0 highlights the lived experiences of people with dementia. We […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-243","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/perspectivesnewsletter.com\/index.php?rest_route=\/wp\/v2\/pages\/243","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/perspectivesnewsletter.com\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/perspectivesnewsletter.com\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/perspectivesnewsletter.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/perspectivesnewsletter.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=243"}],"version-history":[{"count":6,"href":"https:\/\/perspectivesnewsletter.com\/index.php?rest_route=\/wp\/v2\/pages\/243\/revisions"}],"predecessor-version":[{"id":313,"href":"https:\/\/perspectivesnewsletter.com\/index.php?rest_route=\/wp\/v2\/pages\/243\/revisions\/313"}],"wp:attachment":[{"href":"https:\/\/perspectivesnewsletter.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=243"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}